As PER Usual
S2E4 - Listen to SPOR Chronic Pain Network

S2E4 - Listen to SPOR Chronic Pain Network

A culture of valuing patient perspectives

Episode overview

In this episode, we are joined by Norm Buckley, the Scientific Director, and Delane Linkiewich, a patient partner, of the Strategy for Patient-Oriented Research’s Chronic Pain Network. Norman and Delane discuss the history of the network, including how it originated from years of grassroots work carried out by trail blazing physicians who innately understood the importance of patient partnership and experience. They also share details of the network’s formation, its open-minded approach to creating a community of support that truly listens to patients and incorporates their input into the research process, and engage the listener in critical thinking around the importance of patient partner compensation.

Listen here or wherever you download your podcasts!

Meet our guests

Delane Linkiewich: has been living with chronic pain for over 15 years and is a passionate advocate for people living with pain and patient engagement. Delane is currently a PhD student in the Clinical Child and Adolescent Psychology Program at the University of Guelph where she conducts patient-oriented research on peer support for pediatric chronic pain. She has been a member of the Chronic Pain Network since 2018 and sits on the Patient Engagement Committee, having co-chaired this committee for 2 years.

Norman Buckley: A faculty member since 1988, Dr. Norm Buckley is currently professor emeritus in the Department of Anesthesia, Michael G. DeGroote School of Medicine, McMaster University, Hamilton. Dr. Buckley provides chronic pain care through the DeGroote Pain Clinic at McMaster University Medical Centre. Dr. Buckley established the Michael G. DeGroote National Pain Centre and is scientific director of the Michael G. DeGroote Institute for Pain Research and Care, since 2015. He is Nominated Principal Investigator for the Chronic Pain Network, with over $30 million in funding this national research network was created to change the way pain is managed in Canada.

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As PER Usual
a podcast for practical patient engagement