S3E1: From patient to patient researcher: Building capacity with the SPOR IMAGINE Network

Overview

We’re baaaaaaaaaack! In the season 3 premiere of asPERusual – a podcast for practical patient engagement, host Anna Chudyk sits down with Aida Fernandes, Sandra Zelinsky, and Deborah Marshall from the IMAGINE Network—a national initiative focused on understanding the brain-gut connection in inflammatory bowel disease (IBD) and irritable bowel syndrome (IBS).

This episode explores the pivotal role of patient research partners in shaping research, from study design to recruitment, data analysis/synthesis and mobilization. Learn how IMAGINE’s flagship MAGIC study and its 30+ sub-studies benefit from patient-led insights and discover how the Patient and Community Engagement Research (PaCER) program empowers individuals to lead research projects themselves. The guests also share insights on building collaborative relationships, their innovative approach to studying the impacts of engagement, and using digital storytelling to amplify patient voices.

Tune in to hear how IMAGINE is transforming research by placing patients at the heart of discovery.